Tanning helps skin conditions such as eczema

I am not a medical doctor but I sure am an expert on me and my medical conditions.  That’s right if you’ve been reading along on this blog you’ll know that I have received little satisfaction with how eczema (and psoriasis) are dealt with in a GP or even general dermatology way.  So, I usually research and take matters into my own hands.

When I was in highschool and experiencing bad eczema symptoms I was referred to a photodermatology clinic (in Moncton, NB) which offers UVB treatments for photoresponsive conditions such as eczema and psoriasis.  I did it for quite awhile with decent results.  I left Moncton for my schooling and that was the end of the treatments.  Come to think about it, this was the same time in my life that I developed eczema on my hands, just a few fingers at first in 1999.

So, in March 2010 I decided that I would try out just basic tanning at the local tanning studio (which just happens to be a few minutes from my house).  I was about 16 weeks pregnant and desperate to get something that would work.  I spoke with the owner of the salon who was friendly and cheerful, she explained the etiquette expected in the beds and how they have standards around the amount of time people are allowed in the beds.  It’s about safe tanning through not burning and limiting exposure.  Being a biologist whose done a lot of microbiology I also drilled her about the sterilization procedures (btw, they don’t sterilize they sanitize but UV is a great sterilization tool).

So, I started tanning.  Oozy and gross I hopped in the bed for 6 minutes.  I started going once every two days for 3 months working my way up to 10 minutes in the bed.  A funny thing happened when I started spending 8 minutes in the bed, my eczema started to get better.  Yes, it was drying up and feeling much better.  I was sold on this and bought some more minutes.  After about 3 months I was trying to go at least once every 3 days for maintenance.

Its certainly not an exact science however it has worked for me.  I now spend about 12 minutes in the bed once a week and so far so good.

Here is my solution (for now):

 

 

 

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Allergist… shedding some light on triggers.

So, way back last year (March 2010) when I was sooo desperate to get answers to why my eczema was flaring so badly I had my family doctor refer me to an allergist.  Being in Canada where we have “universal” health care I got the next available appointment which was in August.  Knowing I was going to be 9 months pregnant at that time I requested another date and was given an appointment in October.

I went in October with my mostly normal looking skin for the testing.  The appointment started with a round of questions to figure out why I was there.  It was kinda hard for me to describe what my last year has been like. It went kinda like this, “Yes doctor my eczema was crazy disgusting and nuts but now its doing okay”.  My family history is always the same with eczema and allergies running in the family, ect.  Anyways, he somehow decided which tests would be best for me and I was set up with the nurse who would scratch my arms with allergens a ridiculous amount of times.

It was all of the foods which I had tested allergic to with the naturopaths IgG testing last year plus environmental allergens (mold, dust, trees) and some animals (dog, cat, horse, cow).  I know I am crazy allergic to deer as I have a history of my whole face swelling when exposed to the fur (okay, my Dad is a hunter if you are trying to figure out why I would be in contact with deer fur).

Just for fun, I took this picture a few minutes after the pricks.  Yup, I am allergic to ragweed, cows, horses, grass and “trees” (I think birch was one).  Oh, just seeing this picture makes me itch.  Here it is:

After a very itchy 20 minutes, Dr. F came in and checked out the damage.  Whoa! he says, “you are very allergic to cows and horses”.   After measuring a couple of the food reactions (apparently a reaction of more than 3mm is considered allergic) and noting that NONE of the foods that showed up in the IgG testing came back as positive (well, banana and sesame were 2mm so I should watch them apparently) he invited back to his office to discuss the findings.

Back at the office we began with a discussion on dust.  He recommended that I get a house cleaner (Score!, although he can’t write a script for this) to help keep down the household dust.  He suggested  that I consider getting “mite-proof” pillow and mattress casings for my bed to help keep the dust mites from propagating in my sleeping space.  He gave me some information on a Canadian company called CAAP (or Canadian Allergy & Asthma Products) who sell high quality products with LIFETIME warranty.  Here is the information sheet:

Dr. F also included in our conversation that he didn’t have any shares in the company but was quick to add you get what you pay for.

 

 

 

 

Onto my other allergens;  grasses and ragweed.  He gave me this lovely chart for the Ottawa area.  He recommended that I keep track of my eczema symptoms over the next year and see if they correlate to any of the environmental triggers.  He said that if they do I would be a prime candidate for allergy shots.  Here is the chart:

You can see at the bottom where he wrote all the allergens I need to watch for.   I also reacted to dogs and cats.  I have always had a hard time around cats and dogs.  He said that he wasn’t happy to hear we had a dog BUT that he wouldn’t recommend getting rid of her at this time however once the dog dies to not get another one.  I can barely stay in a house for an hour without my asthma being triggered by cat dander.  I am just not meant to live with animals.

 

 

So that’s that.  Now to keep track of my symptoms, try to correlate them to an allergen and go from there.  No puzzle pieces are fitting just yet.

 

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Samples, samples, samples!! Try my product.

Okay, so I am getting hits from spammers trying to get me to link to their sites and “fabulous” products for eczema sufferers.  Well, you have my attention.  My eczema hasn’t responded to anything other then tanning, that’s right no miracle cream or cure that I have tried has worked.  So, contact me and send me some samples.  I’ll try in out and post a review right here for better or for worst.

 

 

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“Dr. Y” – Fuck you!

So, I finally had enough in February of 2011 and decided that I would try once again to see if a dermatologist could help me.  My family doctor was on maternity leave so I spoke with her replacement who quickly wrote me a referral.  I was open to giving this a chance and finding a doctor that would help me “manage” my condition (its chronic and not curable).  I was shocked to find out they got me into a doctor a few days short of 2 weeks from the referral.

The appointment was in a small town not to far from the Quebec/Ontario border.  The doctor is from Montreal and comes to the town on Wednesday to offer dermatological services to Ontario patient.  Sounds kinda like a dream, eh?

Here is how the experience went down:  I found the clinic no problem and besides the lack of parking which was annoying I was optimistic this was going to be a great appointment.  I walk into the clinic to find 30 or more people in the waiting room (and out into the hallway).  Apparently, it is also the local dermatology walk-in clinic whereby as soon as you have a referral you can “stop in” anytime during business hours to see Dr. Y.  Talk about a money grab.

Anyways, I make my way to the counter and present my health card.  The receptionist proceeds to tell me that my appointment was canceled and rescheduled for in a months time.  After informing her that this was news to me (why would I be well over an hour away from home for a canceled appointment?), she told me not to worry as she could fit me in (easy to do for a walk in clinic, I guess).  And so the waiting began.

45 minutes later I was called into the clinic and escorted into an exam room.  Waited another 15 minutes (or so) until Dr. Y walked in.  He was an older guy who walked in with a can of nitrogen gas ready to freeze off a wart or something.  But alas, he gets me the chronic eczema patient.  He quickly looked at my hands and legs but never wanted to see the rest of me (yup, no hospital gown this time), he huffs and sits down in the chair across from me.  He asks the usual questions… and diagnosed me with hereditary eczema and anxiety.  Yup, anxiety.  This dermatologist is apparently also a shrink.  I asked what he meant by anxiety and he qualified it with anxiety is scratching.  So my eczema is itchy which causes me to itch it which equates itself to anxiety.  Jeez, that’s doc.

Now the “fun” part (or the fuck you part of this post).  I was 8 weeks pregnant at the time which changed everything about the appointment.  He told me that the cream (betaderm) I was told to use (sparingly albeit) would, “Give your baby a cleft palate”.  Being a biologist I asked for the studies behind this statement, he abruptly told me to “google it”.  Yeah, fuck you Dr. Y!  This was a hard pill to take as after 2 pregnancies I had never been told that this cream would/could give my baby a cleft palate.  Wow, what is a girl to do when her eczema is preventing her from working some days but she wants the best health for her baby?

Having undergone photoderm therapy when I was in high school I was hoping to get a referral to this type of treatment.  I asked about it, he said that it was available in Ottawa but that he didn’t know where.  I asked if he could find and get back to me.  His answer was, “no, but I can refer you to the clinic in MONTREAL” (which is over 2 hours away from my house, btw).  He wouldn’t even ask for me.

So, he explains that he cannot help me at this point and that I should use Lipikar Cream all the time and come back after 20 weeks if its still bad.  He wouldn’t even talk about what my options are in the future for management.  Wow!

Here are the answers to the other questions I had.

1) Are allergies (food/environmental) linked to my eczema?  Absolutely not!

2) For my severe eczema on my hand, are there any other gloves I can use?  No, not that I know of.  When I asked if he could look in it, he said he would not.  (F-you!)

Now for the aftermath:  I cried the whole drive home.  Leaving with the name of a moisturizer (hoot!) and being told I had given my baby a cleft palate.  This idea was stupid and I was defeated.

But alas, I am not one who stands for bad service.  After all of the stupidity I had just gone through with this appointment the lasting impression for me was that this doctor comes to Ontario from Quebec.  He takes MY tax payer dollars but cannot refer me locally for other dermatological services (ie: the photoderm treatments).  Seriously?   So, I decided that I needed to do something.  Not only for me but for others who face this jerk.

I wrote a letter to the Ontario Minister of Health and Long Term Care, Deb Matthews with copies to my doctor and to Dr. Y.  My letter was forwarded from Deb Matthews’ office to the actual Ministry for consideration.  I’ve never heard back.  I did hear back quickly from my doctors office who referred me to another clinic in Ottawa.

With this guy around, no wonder I have no faith in Dermatologist.

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Thank you Photoderm clinic!!

With all the struggles of the last year or so with trying to get “someone” to actually give me the time of day when it comes to treatment options for my eczema; I think I have finally met my match.

After two months of waiting I was able to see a dermatologist at the Bruyere Continuing Care Center in Ottawa; its a photoderm clinic just like what I had requested back in Sept 2010 but didn’t get referred to until early March 2011.  The treatment offers exposure to mid-range UVB light, the range that photo responsive skin conditions respond to.  Cool, eh?  You start at 10 second and move up in 10 second increments each time  until you get up to a couple of minutes, starting at 3-5 times a week!!

Since I am  6 months pregnant I am going back for a follow up in 3 months to decide if this is the route I want to go with my eczema management.  Its a treatment I used about 12 years ago during high school with decent results.  It’s time consuming though involving many trips into the clinic for treatment, you need to be dedicated to see results.

One of the reasons I liked this clinic was the fact the doctor actually took his time and talked to me (and my husband) about my eczema.  I wasn’t brushed off with the usual “familial hereditary eczema; here is a cream for that”.  He actually “looked” at my skin, like pretty much everywhere which may sound gross but seriously how can you treat a skin condition without seeing the skin?  He took notes, asked follow up questions and he even recommended other dermatologist who specialize in what I have.  So different then what I have experienced in the recent past.  How refreshing.

I haven’t blogged about this yet but I have been going indoor tanning since March 23 this year (so not even 2 months) and it is unbelievable how well my eczema is looking.  It has cleared up on my legs, arms and neck but my hand still cause me some issues but they are WAY more manageable.  I am sold on indoor tanning for MY eczema treatment.  The dermatologist today actually said that it is something I “should” continue doing if it is working.  Of course, he mentioned the “small” risk of cancer but he also acknowledged that the UVB treatment has the same risk.  Everything is risk/benefit and if you have eczema like I do, its a very small risk to a huge benefit.  For the record, tanning while pregnant has  never fully been studied regarding safety but there is lots of hype out there based on fear not facts.  The main thing my doctor and midwife have said is don’t overheat and stay comfortable (laying flat on your back can be uncomfy in the later months).  So far, I’ve been doing max 10 minutes, so I don’t have a chance to become uncomfortable.

TRY TANNING!!!!

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Body Image keeps me on the sidelines…..

I hate this condition…. HATE!!!

My youngest child is taking parent and tot swimming.  Yup,I signed us up with the intention of being the one to help out.  But alas… I am self conscious and disgusting.  How can a don a bathing suit and swim?  I can’t, so my husband gets all the fun.

I hate it!!!

My youngest even asked me today, “Mommy, can you come in to swim with me?”… breaks my heart but I just can’t do it.  I am gross.

Now I know what those kids with insane acne felt like in junior high.

Here is what my leg looked like today.  I would stare if I saw me.

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Dear Naturopath: Can you help me?

I have always thought that my eczema must be caused by something either food allergy related or environmentally related.  I was allergic to cow’s milk as a child so I always thought that must be a trigger.  I’ve cut it out several times during my adulthood so far with limited results.

In my quest for answers, I turned to a lovely local Naturopath.  This type of holistic approach to body healing really makes sense to me.  I also enjoy that I am paying for the service (although I get reimbursed by my benefits) so the service I get is amazing.  My first “intake” appointment was on Sept 13, 2010, it was almost 2 hours of chatting about my medical history, problems to address, ect. I felt fabulous after.

Two weeks later I went back for a review of my “case”, it was essentially her analysis of my health and goals on how to achieve optimum health through the incorporation of naturopathy concepts.  As far as my eczema was concerned, she suggest we start with some IgG antibody testing or just an allergy blood test (see: Rocky Mountain Analytical) .  This was just what I wanted so I followed her instructions to eat as many of the food on the list they gave her twice in a two week period prior to testing.  The premise of course is that you might get a false negative to an allergen if you do not consume it within two weeks of the test.  The test was easy and involved pricking my finger and placing blood on three little sample strips.  I did it at home and put it in the mail, as directed by my naturopath.

So 3 weeks after this come the results; I am allergic to everything I love but surprisingly not overly to dairy.  Here is the little wallet card print out of my results:

My IgG Gllergy Test Results - October 2010

So, essentially the Class IV and greater are to be eliminated (Yup, good bye eggs) and the class III are to be only consumed maximum once every 4 days.

In desperation to help my eczema I started this elimination diet….

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Medical Doctors and Eczema Help

My whole life has revolved around seeing different medical professionals to help “cure” me of my eczema.  I should add that I am an army brat, so I haven’t had a consistent doctor for more then 5 years ever.  I have never had any luck with dermatologist and up until earlier this year had decided never to see one again…. my experience has always been something like this:

1) Walk into the clinic.

2) Strip off (well, only for the “good” ones who want to see the full extend of the problem), and wait for the doctor.

3) Doctor comes in, takes a look usually says, “wow, that’s pretty bad”, discuss the eczema symptoms, family history, ect.

4) Get once again diagnosed with eczema probably cause by heredity and get a script for some kind of steroid cream to help tame the symptoms.  Oh, and not to forget the latest sample of whatever moisturizing cream/wash/lotion the last pharmaceutical company has given them.

Great, thanks for all that mister/misses doctor.

See this is why I just don’t bother with dermatologists, if you don’t have cancer or something to cut off and analyze they don’t care.  They are not a solutions based field, just a get onto the next patient and have a good day type of doctor.

My current family doctor of 5 years has been very understanding (well, as much as she can) and has been very generous with offers for derm referrals and of course the latest steroid cream to “help me” out.

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What is Eczema?

Its pure HELL and exceptionally itchy!

Seriously though, a quick search on google will generally tell you its a a general term for skin inflammation.   Its an overused term in my opinion whereby anyone with some dry skin will complain about eczema (yeah, its a sore spot for me considering what I have gone through).

I love the picture Wikipedia has here: Wikipedia – Eczema, its a picture of someone with eczema on the hands.

I do enjoy the following explanation of cause on wikipedia:

Cause

The hygiene hypothesis postulates that the cause of asthma, eczema, and other allergic diseases is an unusually clean environment. It is supported by epidemiologic studies for asthma.[7] The hypothesis states that exposure to bacteria and other immune system modulators is important during development, and missing out on this exposure increases risk for asthma and allergy.

While it has been suggested that eczema may sometimes be an allergic reaction to the excrement from house dust mites,[8] with up to 5% of people showing antibodies to the mites,[9] the overall role this plays awaits further corroboration.[10]

So, if I have this right….. they have no clue.  It’s correlated to some other conditions such as asthma, allergies and has some genetic component.

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